Saturday, April 2, 2011

Brent got home from the hospital again yesterday at dinnertime.  He had three days of dialysis in a row and afterward was feeling much better.  I have people ask me what I think about Brent starting dialysis and on one hand it has been hard because I really believed that God would heal him before needing dialysis.  On the other hand, though, Brent was feeling so completely horrible before he started dialysis, I am just so thankful that there was something we could do to make him feel better. 

Our next few week are going to be really busy.  Brent will start going to an outpatient center at Greenspring for dialysis on Mondays, Wednesdays and Fridays for two weeks.  He is soon getting a fistula put in his arm for long term dialysis (right now he has a temporary tube coming out of his chest).  Starting in two weeks, Brent is going to start the training to do hemodialysis at home.  He has to go to the training center 5 days a week for 4 - 5 hours a day to be trained to give himself dialysis, draw blood, hook himself up, run the machine, etc.    This training takes about 4 weeks. 

Please continue to pray.  Brent is not feeling well this morning.  He usually feels good for a couple hours a day.  Some of his lab values are pretty out of whack, and the doctors are sure that the aHUS is still "smoldering" -- not nearly as bad as last fall, but still causing problems throughout his body.  A transplant is out of the question until it goes completely into a remission.  We just had a doctor yesterday tell us that aHUS is a very difficult disease to treat and manage.

 We thank you for your prayers  -- we know that God works miracles in the impossible situations.

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