Monday, June 13, 2011

We met with our hematologist last week.....as I said in the previous post, we have two of the genetic tests back and they are both normal.  The best case scenario seems to be if there was a genetic mutation that was localized in the kidneys, because then if the kidneys were replaced the disease would never come back.  This test has not come back, yet, though. 

The great news we received from him was the aHUS looks like it is in remission.  The platelets are normal and the red blood counts are fairly good.  There is also a blood test called haptoglobin which indicates if the red blood cells are being broken down that was completely normal, too.

Unfortunately, Brent's liver function tests were all elevated.   They had gone up a little bit when he was in the hospital back in April, but they were even  higher this month.  The doctor is doing some more blood tests to see if he could find out why they had gone up, but obviously this is a prayer request since Brent had a liver transplant 9 years ago.  Our hematologist wanted us to see Brent's liver doctor, Dr.  Herlong (who Brent has been seeing for 16 years) but Dr. Herlong wants us to switch to another heptologist who can better manage Brent since he is so complicated. 

Please pray for Brent's liver tests to go back to normal.  He is getting another blood test next week. 

We know that in all things God works for the good of those who love him, who have been called according to his purpose (Romans 8:28)   What a tremendous claim Paul makes in this verse!  He does not say, "We know that is some things," "most things," or even "joyful" things" but "ALL things."  This promise spans from the very smallest detail of life to the most important, and from the most humbling of daily tasks to God's greatest works of grace performed during a crisis.                   Streams in the Desert

1 comment:

  1. Praying & asked for more prayer on our facebook page. Love you guys & was amazing the time God gave us with you last week! Craig & fam

    ReplyDelete